Dear friends and colleagues,We have great pleasure in inviting you all to the 12th
International symposium on MPS and related diseases, which will be held in
Noordwijkerhout, the Netherlands, from 28 June to 1 July 2012.
By bringing patients, parents and families together with
professionals, the symposium will be able to share information on all aspects of
MPS and related disorders. The overall objective is to advance the quality of
care and treatment. As well as musculoskeletal disease and MPS, the brain and
MPS, and new approaches to treatment, the main topics of the symposium will be
pricing and reimbursement. All will be covered in joint sessions attended by
doctors, scientists, patients and patients’ families. Separately, doctors and
scientists will also attend more detailed sessions on the CNS, bone disease and
novel approaches to treatment.
Families will not only have opportunities to meet peers from other
countries, but will be able to attend sessions on optimizing care, dealing with
clinical issues and surgery in MPS, and ‘living fully with MPS’. The symposium
will be held at the four-star NH Leeuwenhorst conference center in
Noordwijkerhout, which is approximately 20 minutes from Amsterdam Schiphol
airport and 30 minutes from the city of Amsterdam. Noordwijkerhout lies very
near to a coast with long sandy beaches, and various major cities and sites of
interest are within easy reach. Special activities will be organised for young
patients and their siblings, who will be accompanied by trained volunteers.
On behalf of the organizing committee, we look forward to
welcoming you to Noordwijkerhout next June,
Ans van der Ploeg